Tag: Copaxone

Finding a way

Taking time for fitness

For me, exercising as soon as I get home from work is the way to go. I can do something at home or go use the eqiupment at Planet Fitness. On Mondays, Wednesdays, and Fridays, I schedule the workout before my Copaxone injection. It’s a system that works. Even if I’m feeling a little fatigued or under-the-weather, I can at least get on the floor and do some stretching. I need to lose about 35 pounds and I plan to lose it the way I gained it, slowly. My eating habits are pretty good, but I’m not as active as I need to be. If I don’t make progress in the next couple of months, I’ll have the doctor check my thyroid function. I’m pretty sure it’s a lifestyle problem and not hormones.

In other food news

I got an Instant Pot for Christmas. Now I have to learn how to use it and find recipes that don’t call for 15 ingredients.

Art for sanity

I want to revisit art journaling this year. The book I’m altering is turning into an art journal. I had a thought that I could turn books into journals and sell them on Etsy.

I don’t like how messy the art journal process is. Things would be so much easier if I could quit my job and do art and jewelry full-time. That is something to put on the vision board. That’s another to-do!

I could focus more on digital art, but I like working with real objects. I want to add digital scrapbook paper and embellishments to my Etsy inventory. More to-dos!

Paint on a book page
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Fun with imaging

I got my yearly brain and spine MRIs on Monday. I’m fine with being in a confined space for a significant amount of time (the whole thing takes about two hours). You even get music these days. I think they use Pandora. I chose music from the 80s. The 80s and the 90s were my eras for music by the way. I was treated to some Janet Jackson, Dream Academy, John Mellencamp, Duran Duran, Roxette, Chicago, Julien Lennon, and Power Station. There must have been more, but that’s what I can remember. I fell asleep for a little bit.

MRI on screen
Stock image of an MRI in progress

Anyway, the worst thing about the MRI experience is the feeling of nausea and sometimes near vomiting that happens when they inject the contrast. I warned them at the start and had the lab tech bring a receptacle for me just to be sure. She started the contrast and asked how I was feeling. I was okay. Then she said they had begun using a new formulation of the contrast that had fewer side effects. It was like a miracle. I did not feel any nausea. For once, this yearly check on the lesions on my brain and spine caused by MS was a reasonably okay experience. The worst part was having to get there at 8:00 in the morning.

The doctor’s office called on Tuesday to say everything looked stable. I’d say the three Copaxone injections each week are doing the trick. I’m hoping I can get on an MRI every five years schedule. If that’s a thing they do.

Three years until my first colonoscopy! Huzzah!

At last

I started writing the following a little while ago, but never finished it.

I’m at the hospital waiting to check in for my MRIs. I see the neurologist next week for a 6- month follow-up. She’ll review the MRIs to see how effective the Copaxone injections have been.

The hospital’s main floor is busy. It almost seems like some senior citizens are here on a field trip. It’s kind of unnerving.

This is really not a post about MS, but I’ll report that I had a not-so-great leg day on Monday. I think it was because I didn’t go back to bed for more sleep after Sadie got me up at around 7:30. The last two days have been much better.

I dreamed this morning of two old friends from grad school (UIUC Dance Dept.) I also saw swirling letters or words. When I have these dreams a try and see if the letters are spelling anything, but they fade away too quickly.

Tomorrow is the second to last class of my Library Science grad school career. My application to graduate seems to have gone through, and I’m looking forward to not being a student.

21 days later I’m finally posting

I got an email confirming the address my diploma will be mailed to, so I guess I have graduated. The neurologist said my MRIs looked good and she’ll see me in 6 months. I suppose the Copaxone is working.

This week is dragging. On Monday, I thought that if anyone at work asked how I was, I would say, “I’ve had enough.” No one asked. Tuesday wasn’t as bad, but it wasn’t great. Wednesday was better. It could be that I’m tolerating life better because the arctic air has been moving out. I hate being cold!

If I’m going to get this posted, I need to stop writing. I should have more time to blog now that school is over.

I also have got to stop playing Enso. It’s ruining my neck.

enso.png
Enso game

 

 

My Health

The one-word prompt is healthy. I can work with this one since I was already planning to talk about health.

The nurse came to my house to teach me how to do my Copaxone injection. I’ll be using an auto-inject device instead of a needle, so that makes it a more pleasant thing to have to do three times per week. So I’m on the way to preventing an MS relapse.

Injection rotation planner on the Copaxone Tracker iPhone app.
Injection rotation planner on the Copaxone Tracker iPhone app.

The flare-up that resulted in my diagnosis has just about gone away. Now it’s time to start going to the Y and getting in an hour of exercise at least five times a week. It’s also time to plan and make healthy meals. This is going to take some more work. I tried a recipe for “broccoli tater tots” the other day. It’s basically chopped broccoli with egg, breadcrumbs, and cheese. I forgot to add the cheese, so I wasn’t happy with the end product. I’m not sure the cheese would have added that much, though. I might try to make them again and remember the cheese and also, add something else to enhance the flavor. I may try a different recipe. There seem to be lots of similar ones out there.

Now that I feel better, I don’t have an excuse for not getting started on my goals for staying healthy. I’ll also be going to work instead of working from home.

Onward and upward as they say.